oIHo © 2012
Ohio Intracranial Hypertension Organization (oIHo) is a nonprofit organization with 4 founding members who all suffer from Intracranial Hypertension. oIHo's Board includes 6 board members whose lives have been forever changed by a crippling chronic illness, Intracranial Hypertension. oIHo was formed to help those in Ohio who suffer from IH with financial assistance, such as medical bills and transportation/lodging expenses, that are accumulated during the course of treatment of IH. oIHo is also committed to advocate and raise awareness to help educate patients, doctors and medical facilities about the needs of a patient that suffers from IH. oIHo is a place WHERE HOPE MATTERS to our entire IH family.
What is Intracranial Hypertension (IH) you ask? IH is a rare neurological condition caused when a person’s intracranial pressure (the pressure inside the skull) becomes too high and puts pressure on the person’s brain and optic nerves. The elevated intracranial pressure causes symptoms that mimic a brain tumor, even though there is no actual mass within the brain. Symptoms of IH include, but are not limited to - extreme head pain and pressure, eye pain and pressure, ear pain and pressure, vision loss, ringing in the ears, dizziness, neck/shoulder/back pain, nausea, confusion and memory loss. There is no known cure for IH, only various treatments exist to help manage the symptoms - medications to help the body rid itself of the extra cerebrospinal fluid (CSF), spinal taps to immediately relieve the elevated pressure by removing the excess CSF, and surgically implanted shunts to divert the excess CSF from within the skull. None of these methods effectively control levels of CSF in the body, however, they are the only course of treatments IH patients have to save them from permanent vision loss and permanent brain damage from the constant high pressure due to the elevated CSF levels. IH is often a chronic, debilitating, life-altering condition that severely affects an IH patient's entire life.
When doctors first started diagnosing patients with this disease it was known as Pseudotumor Cerebri (PTC), which literally means false brain tumor. It was used as a broad diagnosis because little was known as to why patients had these symptoms or what was causing them, and often thought of it as a benign condition. As more doctors became aware of the illness, and more research has been done, the name was changed to Intracranial Hypertension. This name was more appropriate, and cut to the point of what was happening within the skull. There is only one foundation in the world designated to doing research on IH, the Intracranial Hypertension Research Foundation (IHRF). The IHRF was founded in 2003, currently covers over 25 countries, has the only IH Patient Registry in the world, and holds an image library with over 8000 images from IH patients. The IHRF has been instrumental in changing the way doctors and medical professionals understand and treat IH patients. We look forward to working with him in their efforts of advocacy, education, and research.
If you would like to donate to IHers medical care, transportation and lodging in order for patients to see competent IH doctors and to help raise awareness please go to our IH store to make a donation via PayPal. You can also mail check or money orders made payable to oIHo to Po Box 265 Newark Ohio 43058.
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